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News

This news section is where you can find the older news previously posted on MS Research and Relief Fund.

Support Services for People Living with Multiple Sclerosis

Tynedale
MSRRF in partnership with the Hexham branch of the MS Society and Northumbria Healthcare NHS Foundation Trust held an Open evening from 6pm—9pm at Hexham General Hospital on Wednesday March 11th 2009

There seems to be a shortage of services for people affected by MS in the Tynedale area and  MS Research and Relief Fund’s Funding and Partnership Manager Cynthia Atkin met with the MS Society in Hexham and representatives from Northumbria Healthcare NHS Foundation Trust to discuss the matter.

As a direct result of this the Open Evening was organised 

As well as being able to access up to date information on all aspects of MS people attending were able to:

 · Find out more about MS Research and Relief Fund and the MS Society

· Try various complementary Therapies

· Attend talks by health professionals

· Have refreshments and meet with other people affected by MS.

· Meet representatives from MS Research and Relief Fund and the MS Society

People attending were given presentations by Doctor Barbara Chandler and

Physiotherapist Julia Johnson from the Community MS Team. 

MS Research and Relief Fund have not fully assessed evaluation forms to date. The evening was a great success with many people taking away information regarding MS. MS Research and Relief Fund and the MS Society.  It is hoped that regular services will be available in Hexham in the very near future.

MS Research and Relief Fund would like to thank Northumbria Healthcare NHS Foundation Trust, Hexham branch MS Society, MS Research and Relief Fund Complementary therapists, the  Community MS Team, all speakers, all those providing information and advice, all those attending and everyone else involved in Making the evening a great success. 

Durham
MS Research and Relief Fund currently provide exercise classes on a Monday and Friday morning, complementary therapies every Tuesday morning and yoga every Thursday morning for people affected by MS in Durham.

From Tuesday 28th April 2009 MS Research and Relief Fund are extending service provision in  Durham to also provide:

 · Physiotherapy and gentle exercise classes

· One to one physiotherapy support

· Pilates class

· Complementary therapies

 For more information give us a call on 01670 505829

Alec and Sandra’s Coast to Coast Bike Ride 20-23 July 2009

Alec James fulfilled a life-time dream to participate in  a Coast to Coast Bike ride from and  was joined by his daughter’s friend Sandra Collett. Alec writes about the ride for MSRRF:

 At the sprightly age of 76 taking part in the C2C bike has been a long held dream of mine. Whilst chatting in the interval of a pre Xmas concert at the Sage, my daughters good friend Sandra also confessed her ambition to complete the ride. This is the moment the plan was hatched.

 My daughter, Sarah was diagnosed with MS in 2004 and we agreed that this would be a good opportunity to raise funds for relevant MS charities. 

Alec and Sandra at the start of their journey
Alec and Sandra at the start of their journey
Finished
Alec and Sandra at the start of their journey

 We were lucky to be blessed with 2 fine days and 2 which were mixed with heavy rain in parts. Some of the climbs were challenging such as Winlatter pass in the lakes but the hardest stage was on the 3rd day over the Pennine moors. Quite a bit of walking was involved that day and Sandra’s rain cape also gave way to the pressure and fell apart.

 The camaraderie between fellow cyclists (mostly holiday makers) was very good, but the most impressive and brave were 2 youthful lads attempting the task on Unicycles to raise funds for the North East Air Ambulance service. (We gave them a £10 donation.)

Despite the hic-cups of problems with cycle chains and one puncture, the only serious mishap occurred on the last day when over Stanhope Moor a small dog took a dislike to me and jumped onto the cycle path. The cycle and I parted company, luckily in transit I spotted a large clump of heather which proved a softer landing than the rocky path ahead.

 So scratched, bruised and fatigued but also elated with our achievement we completed our journey in Tynemouth almost to time. And raised a few bob for MSRRF on the way!!

 Alec James and Sandra Corlett

LEJOG

Geoff Gafford has a relative who has MS and he took on a mammoth walk from Land’s End to John O’Groats and raised funds for MSRRF in the process. Geoff took the initials of Land’s End and John O’Groats and gave his walk the name LEJOG.

On behalf of everyone involved in the charity I would like to thank Geoff for raising funds for us. It is very much appreciated and will be used to provide services for people affected by MS.

Geoff writes about his experiences for MS Inspirations:

I had to let a little time pass before writing a short  retrospective of my epic walk from Land’s End to John O’Groats for MSRRF.

Geoff at Benmar house with (from left to right) MSRRF’s Diane Charlton, Deborah Richardson, Angela Angus and Cynthia Atkin

Geoff at Benmar house with (from left to right) MSRRF’s Diane Charlton, Deborah Richardson, Angela Angus and Cynthia Atkin

OK WHAT BUS DO i GET HOME ??????????????Geoff pictured at his final destination John O’Groats

I was walking for ten weeks and covered 1,060 miles. Looking back, there were parts either not as interesting as others (the flat bits of the Somerset Levels and maybe Staffordshire) and parts that were quite tough (the West Highland Way on hot days with no shade) but the whole walk was an amazing experience, all the more so because of the people I met along the way and because the journey had an aim  – raising money for a worthwhile cause. I raised getting on for £4,000, plus tax relief through GiftAid on a good proportion of that.


I was walking alone most of the way. I’ve found that I prefer that as strangers are more open and  welcoming to a lone walker. For instance, I met two lovely ladies in Scotland and within five minutes of chatting, they’d invited me to supper that evening and a bed for the night (well, my sleeping bag in front of their fireplace).

Backpacking is my passion. I love walking day after day, being totally self-sufficient, moving on from place to place with the only limitation being how far I can walk in a day. It is the only way to really  experience a constantly changing landscape and become part of it. Thank you, MSRRF for giving me the excuse to escape “normal life”, if only for a while.

My wife and I enjoyed being welcomed on our way home to MSRRF’s centre in Morpeth where we met the staff and were given a tour of the facilities. It being a small charity, it was good to see how the money I raised will make a positive contribution to what the charity can do for those affected by multiple sclerosis. 

My daily account of the walk can be found at http://litehikersblog.blogspot.com I’ve also uploaded photographs to it. 

Geoff Gafford

CONDUCTIVE EDUCATION AND MS

MS Research and Relief Fund has provided the Percy Hedley Foundation with £10,000 to fund a new ‘Conductive Education’ programme at the Foundation’s centre in Forest Hall, Newcastle upon Tyne.

MSRRF’s Cynthia Atkin with Conductive Education staff and service users

Speaking at the launch, the Chairman of MS Research and Relief Fund Paul Atkinson said: “Our Charity strives to offer support to anybody who is affected by Multiple Sclerosis and we look favourably on all projects which we feel help us meet our objectives.” The Conductive Education Programme will certainly fall into that category and we look forward to forging a strong relationship with the Percy Hedley Foundation.”

The Conductive Education Programme has been set up to help people with MS improve their mobility and communication. It is being run by fully trained ‘conductors’ and there are usually two conductors in each group ensuring a good ratio of conductors to patients. All conductors have studied for a 3 year degree and hold a B.A. Hons in Conductive Education.

So, what is Conductive Education?


Melanie Brown, director of conductive rehabilitation services at the National Institute for Conductive Education (NICE) explains, "Conductive education is an educational approach to habilitation and rehabilitation for adults and children with motor disorders." Motor disorders arise in people when damage to the central nervous system affects the person's ability to control movement, for example, in Cerebral Palsy, Multiple Sclerosis, Stroke, Parkinson's Disease, or following head injury. Conductive Education teaches adults and children with motor disorders how to help achieve control over bodily movements and coordination.

Conductive education originates from the work of Austrian-Hungarian physician András Petõ who developed his ideas while working with adults and children with motor disorders in Budapest, Hungary, after the Second World War. Petõ believed problems of bodily control and coordination were not an inevitable consequence of motor disorders. He thought people with motor disorders could learn how to use their bodies more effectively to solve movement problems encountered in daily activities, giving them more independence and dignity. Petõ believed gaining control over movements and
coordination was not a medical but an educational matter.

MSRRF Chairman Paul Atkinson
and Tony Best from the Percy
Hedley Foundation.


MSRRF’s Dave Farham and Cynthia Atkin are monitoring the progress of the rogramme and participants. MSRRF Chairman Paul Atkinson thought that the best way to do this as for Dave and Cynthia; who both have MS, to actively participate in the programme.

Dave first experienced conductive education in 1990 when he went to the Petõ Institute in Hungary for 3 weeks. When attending the launch’ for the programme Dave was both surprised and pleased to find that the conductor leading the programme at Percy Hedley is Agnes Mikula; the senior conductor from the Petõ institute who first taught
Dave the techniques in Hungary!

We will keep you informed of the course’s progress.

MS SERVICE USER FORUM - NORTHUMBERLAND

An MS Service User Forum was set up in May 2008 following meetings between Northumberland Care Trust, MSRRF and service users at Benmar House (MS Research and Relief fund), with the involvement of the South East Northumberland branch of the MS Society. The primary aims are to:

Involve people with MS in improving the services of the Northumberland Health Care Trust and make access to these services easier

Develop the awareness and understanding of the complexities of MS and highlight the impact of these conditions on people’s lives

To understand what changes people affected by MS feel would improve services

The forum is made up of:

  • People with MS
  •  People affected by MS
  • Representatives from voluntary sector agencies
  • Northumberland Care Trust staff
  • Health care professionals

Initially the group is based in South East Northumberland with the intention of using the group as a ‘blue print’  for other areas of Northumberland, and hopefully to later meet the needs of people with other long term health conditions.

Support Services for People Living with Multiple Sclerosis

Anyone living with MS can access MSRRF support services free of charge, these services include:-

  • Free Complementary therapies, access to gentle exercise classes with trained fitness instructors at  various sites throughout the Northern Region.
  • Use of a range of exercise equipment under supervision – with future plans to expand the service to other areas.
  • Grant Provision locally as well as nationally for individuals or MS related groups who wish to improve the daily lives of people living with this long-term condition.

MS Research and Relief Fund plan to develop as many outreach services in the Northern Region as possible. The following areas are now up and running successfully – Berwick, Morpeth, Newcastle East, Newcastle West, South Tyneside, and Durham, with development plans already underway in Tynedale  

We rely solely on donations, legacies and general fundraising to fund our work. We do not undertake door to door fundraising to raise necessary funds.

If you are interested in working in partnership with us, accessing services from us, or simply interested in the work of MSRRF please contact Cynthia Atkin on: Tel: 01670 505829, email: info@ms-researchandrelief.org, fax:01670516347. You can also visit our website www.ms-researchandrelief.org – or www.justgiving.co.uk to make a donation to MSRRF.

The Montel Williams MS Foundation

When American talk show host Montel Williams was diagnosed with MS he pledged to use his celebrity to help find a cure, and formed The Montel Williams MS Foundation. The foundation seeks to provide financial assistance to certain organisations that are conducting MS research, to raise awareness of MS, and to educate. Montel

One hundred percent of all donations from individuals go toward the research that will hopefully lead to a cure. In April of 2001, The Montel Williams MS Foundation gave it's first-ever grants to three trailblazing organisations: The Foundation for Neurological Diseases at Harvard University, a comprehensive care and research centre; The Nancy Davis Foundation's Centre Without Walls, a collaboration of scientists at top hospitals and universities; and The Karolinska-Nobel   Institute in Sweden, which is a pioneer in MS research. These organisations received $100,000 each, with the hope that a cure will not be far away. Grants from the foundation are allocated on an annual basis and each organisation will be reviewed or re-evaluated.

Montel wrote and published the book Life Lessons and Reflections. All of Montel's author royalties for the book's sale are being donated to The Montel Williams MS Foundation. Montel has also joined forces with Spotlight Health -- an organisation that combines healthcare expertise with celebrity experiences. It's a forum for sharing information and providing support to people affected by certain diseases and Montel participates in live online chats.

From the moment Montel's doctors said those words, "You have MS," his life changed forever. He hopes that by sharing his experiences with you, he will help you or someone you love -- and he knows that by spreading the word and by supporting MS research we can all help millions of people.

For more information you can contact the foundation at:

The Montel Williams MS Foundation
331 West 57th Street, PMB 420
New York, NY 10019
e-mail info@montelms.org
website www.montelms.org

Spotlight Health is a creator of celebrity-featured health care content and communication programs. 
With the guidance of the world's top medical experts, stories of celebrities' personal health experiences are merged with accurate, understandable medical information, creating content that combines the     attraction of celebrity with the authority of medical authority.  Spotlight Health delivers this to consumers and health professionals through various channels, including web, television, radio, print, software, and live events.

Vibrogym

Vibration Therapy Study

The Vibrogym is one of the most popular services/therapies on offer at Benmar House with appointments often booked up well in advance. A research study in America is determining the benefits of vibration therapy for people with MS and is said to be having an immediate impact on participants, one stating that she could feel her feet again, and another saying the treatment left her legs tingling and buzzing like they hadn't felt in years.

Study supervisor Dr Steve Stannard says the trial was devised to see whether side-to-side alternating vibration therapy was able to help people with MS.

“The vibration stimulus is thought to cause a reflex contraction of muscle so in MS patients this might be therapeutic . Says Dr. Stannard, it's a way of  side-stepping the brain and making the muscles contract.”

Rachael Mason is conducting the trial as her Masters of Science Exercise Physiology   project.  “We wanted to apply vibration therapy to a group who could benefit the most,” she says. “People with MS, because they can't use their muscles in a fully co-coordinated way, often don't get any physical activity. Some of the health problems they end up with are in fact related to the fact they are not exercising so there is real potential for these people.”

Ms Mason is working with MidCentral Health rehabilitation specialist Dr Greg Denny. He is completing  detailed medical assessments of participants, before the therapy to ascertain their physical ability level. “Dr Denny does a full medical screening and a neurological  examination. The disability can be broken down into seven components and, from there people's function can be graded as either normal or with a  particular degree of disability.” Ms Mason says. “We then do a series of functional tests before and after participation in the study so we can see whether vibration therapy has been beneficial.”

Participants must meet strict criteria to ensure the trial is safe and appropriate for them. With the first sessions underway, detailed results are expected early next year.

Manawatu Multiple Sclerosis Society field officer Kristin Leslie says the society is looking at purchasing its own machine in order to make vibration therapy available for more members. “I think because there's no cure for MS anything that may benefit our members is good,” Mrs. Leslie says. “Hopefully this trial will prove to be beneficial, improving people's    mobility and balance and leading to a    better quality of life.”

Source: Massey University © 1998-2008 (10/10/08)

 PAEDIATRIC MS

I have written about paediatric (childhood) MS in previous newsletters but it’s a fascinating area of MS and worth re-visiting.

Most people think of MS as a condition only affecting adults, but in fact it can affect children who unfortunately often go unrecognized and undiagnosed. Studies suggest 2 to 5% of all people with MS have a history of symptom onset before age 18.

At just 14, Patsy Peebles, from Gateshead, became one of the youngest people ever diagnosed with MS in the UK.  Patsy, now 15, has been signed up by the MS Society and acts as a model for the charity's publicity work, in their campaign to raise awareness of MS in young people. Patsy has a very positive outlook on life, how MS affects her and is in regular contact with other young people with MS. She also has a daily blog called Purely Patsy on the Newcastle based Evening Chronicle’s website.

A diagnosis of MS in children is more challenging than in adults due to the frequency of other childhood disorders with similar symptoms and characteristics.

Increasing evidence suggests that the disease modifying therapies (approved for use in adults) are safe and well tolerated in children; however large clinical trials are needed to assess treatment efficacy.

Most symptoms of MS seen in children are similar to those seen in adults. There are, however, symptoms experienced by children that are not typical in adults, such as seizures and mental status changes (lethargy). Findings of a study published in the New England Journal of Medicine include:

  • Children are more likely to have a relapsing/remitting form of the disease characterised by      flare-ups followed by complete recovery.
  •  It takes longer for people whose MS begins in childhood to become disabled as a result of the  disease.
  • Girls are more likely than boys to get MS as children.

Children with MS may have one key symptom of optic neuritis - inflammation of the optic nerve that can cause vision problems

Psychosocial consequences of MS in children and adolescents may affect academic performance, family relations, and specific adolescent issues including self-image and relationships with peers. An evaluation by a trained professional can help determine appropriate interventions.

Paediatricians may not be familiar with MS because they are not expecting to see it in children. 

Because of the critical need to better understand paediatric MS, the National MS Society (of America) established the first-of-its-kind network of Paediatric MS Centres of excellence, each offering comprehensive services through multidisciplinary teams including paediatric and adult MS experts.

“The MS Society held a development day for professionals working with children with MS and their families. During the day, clinicians gave presentations of possible paediatric MS incidents. They highlighted some of the difficulties of diagnosing a child with MS. Delegates also heard from Patsy Peebles. In the afternoon, the professionals explored how to discuss a new diagnosis of MS with children and their families.”

If you would like any more information on Paediatric MS contact Dave Farham at Benmar House.

 

ART THERAPY

Every Thursday morning at Benmar House MSRRF is host to a very popular Art class that most participants genuinely feel is therapeutic. Art (as) Therapy is becoming increasingly popular and  patients with many different conditions, including MS, can even be referred to an Art Therapist.

 

Arts Therapy

 

Art Therapy is a form of psychotherapy that uses art media as its primary mode of communication. It uses the creative process of making art to improve and enhance the physical, mental and emotional well-being of individuals of all ages. It is based on the belief that the creative process involved in artistic self-expression helps people to resolve conflicts and problems, develop interpersonal skills, manage behaviour, reduce stress, increase self-esteem and self-awareness, and achieve insight. Art therapy requires no artistic ability, as one person said  "It is the process that is important, not the product". An Art Therapist offers guidance and support and the opportunity to explore issues of concern using a variety of art materials.

 

Art therapy integrates drawing, painting, sculpture, etc. with models of  psychotherapy and counselling. Art therapy is used with children, adolescents, adults, groups, and families to assess and treat things such as: anxiety, depression, family and relationship issues, abuse and domestic violence, emotional difficulties related to disability, trauma and loss, neurological problems; and psychosocial difficulties related to medical illness. Art therapy programs may be found in a number of settings  including hospitals, clinics, community agencies, wellness centres, educational institutions, businesses, and private practices.

 

Art therapy offers an opportunity to explore painful thoughts and feelings related to any of the problems or conditions outlined above, in a supportive environment. It involves using a wide variety of art materials, for example paints, pastels and clay, to create a visual representation of thought and feelings. Art Therapy can be an individual activity but is often used very successfully in group situations

 

Art therapists are master’s level professionals who hold a degree in art therapy or a related field.   Educational requirements include: theories of art therapy, counselling, and psychotherapy; ethics and standards of practice; assessment and evaluation; individual, group, and family techniques; human and creative development; multicultural issues; research methods; and practical experiences in     clinical, community, and/or other settings. Art therapists are skilled in a variety of art modalities (drawing, painting, sculpture, and other media) for assessment and treatment.

 

Art therapy can certainly be beneficial on an individual basis but is also very successful in group     settings. This may help explain why virtually everyone attending our Art class feels it is therapeutic. If you would like to visit the Art Class just contact Benmar House for more details.

 

FOOD AS MEDICINE

New research suggests that caffeine, green tea and cherries may guard against multiple sclerosis, cancer and cardiovascular troubles, respectively.All three findings, which confirm the healthy properties of these foods, were presented last month at the Experimental Biology 2008 meeting in San Diego, America.

Caffeine appears to help ward off multiple sclerosis, at least in a preliminary animal study. Mice given caffeine were 75 percent less likely to develop the animal model of MS than those not given it, said study senior author Dr. Margaret Bynoe, an assistant professor of microbiology and immunology at Cornell University School of Veterinary Medicine, in New York. "The 25 percent who got it got mild cases," she said, although she did say that the  research is preliminary and the trials were in mice that had the animal model of MS.

Why does caffeine help? Caffeine is known to block a compound called adenosine. "Inhibiting adenosine  prevents the infiltration of lymphocytes (a type of white blood cell involved in immune system response) into the central nervous system," Dr. Bynoe explained. "If the  lymphocytes cannot get in, you cannot get the inflammation characteristic of MS. The inflammatory response is what causes the damage to the myelin covering the nerve cells." Dr. Bynoe believes her team is the first to demonstrate this mechanism. In the mice given caffeine that was the equivalent of 6 to 8 cups of coffee a day for humans, "there was a reduction in the inflammation, the pathology and a reduction in the brain pathology," Dr. Bynoe said. Adenosine plays a crucial role in many body processes, including    energy transfer, the promotion of sleep and the suppression of arousal. Caffeine can bind to the same receptors as ine, preventing the adenosine from attaching to cells in the central nervous system. The new finding is "certainly deserving of further study," said Dr. John Richert, executive vice president of research and clinical programs for the National Multiple Sclerosis Society. But he added "It's important to remember that the animal model of MS is not MS, and many potential treatments that have worked on  the animal model have not worked on MS." Source: The Washington Post April 2008

‘CAN DO IT’ FROM B & Q

B & Q have launched their new ‘Can Do’ range of specially selected products for making life easier around the home and garden.The range includes items such as an Independent Living walk in bath, electronically operated height  adjustable kitchens and specially made gardening tools.They are marked with a ‘Can Do’ logo in stores where catalogues are available. These can also be downloaded from their website www.diy.com

WARNING ON ROGUE TRADERS

The British Healthcare Trades Association (BHTA) has condemned the practices of salesmen in an adjustable bed company and a scooter company. They have been pressurising elderly and disabled people into buying products they didn’t need or want.

They advise people to go to a registered BHTA member company which will give members of the public the security of dealing with a company that is committed to providing high standards of service, as set out in their code of practice.
BHTA registered persons are also committed to a personal code of conduct. For more information you can check out the BHTA’s website www.bhta.com

 

BERWICK

MS Research and Relief Fund are working in partnership with the MS Society, Northumberland Care Trust, Northumbria Healthcare NHS Foundation Trust, the MS Society Scotland, and Northumberland FISHNET’s on an MS Outreach Therapy and Advice Service at Berwick Infirmary. The project helps to give people affected by Multiple Sclerosis in North Northumberland access to complementary therapies, an MS Specialist Nurse and to a Physiotherapist.

Informative presentations and demonstrations are also available on a fortnightly basis.

For further information contact MS Research and Relief Fund on 01670 505 829 or Jane Metcalfe, MS Specialist Nurse on 01289 356686.

NEWCASTLE UPON TYNE

MSRRF are delighted to be working in partnership with the Community MS Team, the MS Society and people affected by MS in Newcastle upon Tyne.

At Walkergate hospital an MSRRF therapist provides complementary therapies every Tuesday morning.

At the Lemington Centre in the West End of the city we are working in partnership with the MS Society and people affected by MS to provide a gentle exercise class and complementary therapies every Thursday afternoon from 1pm to 4pm.
 
You can give us a ring at Benmar House for more information

EXERCISE CLASSES

We provide gentle exercise classes in Morpeth, Newcastle and Durham. All people affected by MS are welcome.

At Benmar House in Morpeth the class is held every Friday morning

The class at Lemington is at 1pm every Thursday afternoon
We have 2 classes at Belmont Parish hall in Durham every Monday morning and every Friday morning.

At the Abbey Leisure Centre we have an exercise class every Tuesday Morning

 

COMPLEMENTARY THERAPIES

We now have 5 complementary therapists at Benmar house providing therapies by appointment from 9am – 5pm every weekday.

Complementary therapies are also available by appointment at:

Abbey Leisure Centre, Durham every Tuesday morning

Walkergate Park hospital, Newcastle upon Tyne, every Tuesday morning.

The Millennium Phab club, Jarrow every Wednesday.

The Lemington Centre, Newcastle upon Tyne, every Thursday afternoon.

Healthworks at Easington Colliery every Tuesday morning

Hexham General Hospital on alternative Fridays

Berwick Day Hospital, Berwick, every 2nd and 4th Monday of the month.

Vibrogym

Earlier this year, we opened a brand new Fitness Lounge, complete with toning tables and a passive/active exercise bike. However, chief amongst the new equipment, is the Vibrogym.

Find out more...


Dutch Authorities Ban Rotterdam Stem Cell Treatment

MSRRF have received many inquiries about stem cell treatment from people with (MS). Our advice has always been that people should gather as muchinformation on stem cell treatments as they possibly can and speak to their doctor and/or consultant before making any decisions. We have also advised that research on stem cell treatment is still in its infancy and it may perhaps be better to wait. The MS Society have highlighted this with news that on October 2nd 2007 the Dutch authorities ordered (Preventive Medicine Company commonly) (PMC) to stop performing stem cell treatments.

“The Dutch health care inspectorate has ordered the PMC clinic in Rotterdam to stop performing stem cell treatments for MS and other conditions. In a statement it said it had concluded PMC was not providing responsible care, because it is unable to demonstrate the origin, suitability and safety of the stem cells it used. This jeopardised the health and safety of patients. Among other things, it exposed patients to the risk of infection with HIV orCreutzfeldt-Jacob Disease, allergic reactions, malignant tumours or rejection reactions.”

On Friday 29 September, the Inspectorate received a notification from the Havenziekenhuis hospital in Rotterdam about a patient who had to be admitted with serious complications following stem cell treatment at the clinic. The patient had a serious acute allergic reaction after the administering of stem cells. After being treated, the patient was allowed to return home. Said the Inspectorate: “Under the Dutch Care Institutions (Quality) Act, the PMC is required to provide responsible care. This means care of a good level that is efficient, effective and suitable for the patient. In the case of stem cell treatment, the PMC is obliged to demonstrate through documentation the safety of the entire stem cell supply chain from donor to recipient. To date, the PMC has been unable to present any documentation to the Inspectorate concerning the origin, the suitability for the intended application and the safety of the products that are used.” The weeklong-order took effect at 5pm on Monday 2 October and the Inspectorate is expected to ask the Minister of Health, Welfare and Sport to renew it. The Inspectorate said it was also considering bringing disciplinary charges against the physicians who work at the PMC.

 

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